Been trying to get the pain and nausea balanced. No fun to have to barf in the bucket. Spent the weekend at the Hospice house to try to get this all stabilized so I don't feel the pain and avoid the nausea. Will be home Monday(tomorrow) with the new routine on the medications.
Part of the house was painted while I was gone. Thank you to all those that helped.
lisa: most days i know which day it is. today is thursday. heather came home and surprised us. she will be here for a few days. i'm feeling really well.
heather: mom is pretty confused sometimes. but she's still here and usually has an idea of what's going on. she's tired and unsteady but still walking around. she says some pretty funny things. makes us all laugh and keeps things light. she's so wonderful about all of this and is hanging in there so well.
Lisa is in the hospital again. She has not been managing her blood sugars properly. She is recovering well and should come home soon. We will be giving her lots of help with her medicine and blood sugar management.
We had fun with the kids Tifiny and Priscilla brought - (just five of them, the rest had to stay back :( home, They got to stay from Friday til Sunday and we loved them to pieces!!!!!!! Priscilla and Tifinys quite the clever cook! Her food is sooooo. We have talked with Dr, Klarenet's office and asked for the various reports, they are also goihng to talk with Dr. Rado's office and get me into a better situation. It will take several more days.
In the meantime, I keep crash-landing on everything in the bathroom, Ouch!
so, I'm doing just the normal things...... Eating lasagne from Costco (told Dad we HAD to stop there after the coumadin clinic...) we got us some main dishes for the rest of the week.... Susan and dtr came by - looked good enough for them - not sure what that may be but I'm not anything but tired...... Dawn made a wonderful comment on my last blog. It's had me laughing for quite a while!!! Thank you!!!!!
The doctor has turned this case over. It'a too big for him. My vital signs yesterday were too much -bp 77/55. So, I'll just have to show him - I'll make it past these next few months!!!!! I'll carry on through the 23rd Psalm (This is what's gotten me past the last two months!!!!) I'll finish the last two lessons in my New Testament class!!! Just see! AND PLEASE JUST CHEERY NOTES!!!
Today I had chemo at the hospital. They take reallly good care of us there... It was even sunshiny at times today. Hurray! Sure been a sleepy head. Ready for Ground Hog's Day movie - one of my favorites!!!!!
I went to the hospital with Mom to get blood work and a "stAt" ct scan. We made sure it was just an hour.......... AT the exact hour, we got up to leave and the doctor cornered us and said we had to be admitted to Er = I have blood clots and have to stay here in the hospital a few more days..........
Okay, Mom and I walked in for a lumbar puncture test on Monday, Figured it would be about an hour.... ended up laughing at each other because it was a 7-hour test! After getting "hydrated" on the IV, there was the TEST and then we had to wait 4 hours while they oberserved me and had me eat dinner. We had to laugh at each other because we weren't sure what else to do! Then I had to spend yesterday all day in bed observing the rules ...... so amazing! No chemo - I'll find out about that today at my doctor appointment.
So next time, find out what's involved with your tests BEFORE HAND!!!!!
So, I got sick anyway.....I can move around a bit for about 15 seconds, then my ears start pulsing and I crash while I wait for it to end. The anti-nausea meds help some... but can't do much else but watch the world spin. I need help getting around.
POOR Kyle, he's been asking for an ice cream cone for days and then he dr0pped the package and broke them all! So sad.
I finished the book "The Undaunted" last week. I can't believe they really did all of that excavating. I guess I would have been one of the "less Chosen" ones rather than go through all of that!
I got a call tonight - they want to do a lumbar something or other next Monday. I think they're just wanting to try out every new fangled test that comes along.
My family is getting sick by degrees. First Jacob, then Taija, then Dad now Max - all throwing up for a day. We've been laundering and washing door knobs and light switches..... I hope I don't get it, too..
Took the blood test today, things went great. The other tests all came back okay. - The ultrasound and MRI... I get chemo on Tuesday at noon. I take a little less of the steroids... more of the intestine meds...
I was going to share with you some very good news. My brain MRI came back with excellent results - all the doctors were very impressed that the tumors there are SHRINKING! Yea!!! Monday Dr. O'Grady told me how unexpected the results were.
Then Monday night I ended up in the hospital because I'd been throwing up for 2 1/2 days and I was dehydrating. I spent the evening/day in the hospital getting rehydrated .... I felt tremendously better that night and early Tuesday morning. The next day, I was supposed to have a Dr. Klarnet (cancer center) appointment and more chemo, but, the soonest I could get out of Kadlec was 11:30 a.m. We got home and back to the cancer center appointment. Dr. Klarnet had a boatload of questions for us that we had absolutely no answers.
We determined from the blood work that I was nauseated again because I need to return to my steroids full-time. Also, my blood platelets levels were skyrocketing - another indication that I need to be back on the steroids. It shows that my body is under a lot of stress. I stayed there at the cancer center getting rehydrated AGAIN and getting more steroids and anti-nausea drugs. They are going to do three tests this week - PET scan, brain MRI and an ultra-sound to see if it's a gall-bladder problem. He said that he's going to start at square one and determine what is going on with my cancer.... and there will be no more chemo until we find out what's going on, either.
So, once there was some good news... maybe there will be more later.....
A big thank you for those who brought us dinner tonight. We certainly needed it and it was delicious!
Yesterday I got my chemo treatment. We had to go to Kadlec due to our insurance situation. It actually worked out very well! I was put in a room with a bed for me (!!) and the nice cozy chair was for Mom. And they insisted that I order a meal since it was all part of the room coverage. Answering their myriad of questions was tiring, but other than that, we're looking forward to next week!
No steroids this time (no extra energy) and no Abraxane... I wish the steroids would leave (so I wouldn't look so fat).... they just keep hanging out in my cheeks...... I went to the dentist today since a side-effect of the zometa (bone strengthener) is degenerating jaw bones... They took some x-rays and said that the aches weren't due to the zometa - I'm so glad! But, they'll have this x-ray to serve as a baseline in case at some point in the future there is a problem.
Changed insurance as of the first of the year. This complicated things as far as chemo is concerned. I got my lab work done and visited with the nurse practitioner, but I'll be getting chemo at Kadlec for the next several times. Starting with tomorrow. We got home after only being gone 3 hours! The nurse I got today told me as much or more than the one last week. She said that after going through radiation, it is expected that the scan on my brain shows larger tumors. She said that's why they wait at least 6 weeks before doing an MRI for the swelling to go down. So, drum roll........ my tumors are responding wonderfully to the chemo drugs; they've gone down in size. That's good news for me! So glad that Mom (and Dad) are here to get me everywhere and remember to ask all the good questions.
A few side effects - my fingers are tingly and numb.... my tongue tastes everything strange... My scalp is still really sore (and hanging onto those few whispy locks)...My appetite is way down - I only get a few nibbles down before I'm stufffed...
And, more good news. Saturday I tripped and crashed head-first into the bedroom wall (no, that's not the good news.......) Then I landed on my behind. And know what? I didn't break apart. My worst fear and I survived!!!!! I'm in one piece! Hurray!
I'm a mom, wife, student, genealogist and I love my lap top. I like to laugh and read. And be with family. I did the breast cancer thing in May 2008 - lumpectomy, nodes, chemotherapy, radiation....
Dec 2008 was my last radiation but alas, alak, those tests are not to be trusted!
This past Fall I had a bulging disc in my back. A miracle "pain." An MRI in Sep 2009 showed the disc and... cancer. Did a bone scan and found more. I've broken my right arm - (pathological break a couple weeks ago just for interest), had back and brain surgery most recently and will begin radiation soon. Apparently, the breast cancer was lurking around in my bones all this time and no one figured it out! Good thing God is on board and is taking great care of me... us... everyone:)